Become a Member of the NGO Committee for Rare Diseases

Are you interested in becoming a member? Please get in touch

Member types

NGOs in consultative status with ECOSOC

NGOs in consultative status with other UN bodies than ECOSOC (e.g. WHO, DPI)

All for-profit undertakings, e.g. private sector organisations

Persons actively working for the benefit of people living with rare diseases, or with a noted political or academic expertise on rare diseases

All other NGOs, governments, patient groups, academic institutions or civil society organisations / Non-profit only