Are you interested in becoming a member? Please get in touch
Member types
Regular Members
NGOs in consultative status with ECOSOC
Associate Members
NGOs in consultative status with other UN bodies than ECOSOC (e.g. WHO, DPI)
Supporter Members
All for-profit undertakings, e.g. private sector organisations
Individual Members
Persons actively working for the benefit of people living with rare diseases, or with a noted political or academic expertise on rare diseases
Observer Members
All other NGOs, governments, patient groups, academic institutions or civil society organisations / Non-profit only
